Tuesday, July 8, 2014

Starting Over


I have been pre-emptorily blocked out of my Halt Stop Forget Relax blog on Blogger because I changed ISPs and didn't change my sign in address the day before it went active. I have gone through their help section and while they don't recognize my sign in, they send all of their helpful answers, including my new password information to my old inactive e-mail account. I have since managed to sign into Google, but still not to Blogger, so I am starting over.  Of course, with my lovely memory deficits, I can barely remember any of your Blogs' names (they come and go), let alone their URLs which Google/Blogger requires, so how do I get in touch with you for help?  I guess I will contact Lisa over at the Carnival of MS Bloggers. I am bound to get a few of you back through her.

I have my new chair! It's mostly black (seat and arms, and boy do they get hot in the sun!), but has cherry red on the back and over the motor. DH hasn't put a barrier lip on the make shift ramp out of the back yard yet, so I don't dare try to go up it lest I end up in the pond. My driving skills need much work in tight spaces, and I have the gouged door jambs to prove it. Needless to  say, at 970 s.f., my whole house consists of tight spaces.

I did manage to make it on to the patio for awhile this afternoon. It's 84° out there, and now it's time for me to cool off inside. For some reason, even though this house is poorly insulated, lucky for me it stays remarkably cool during the heat of the Summer.

I am patiently waiting to take this baby out and see what she can do; crank her up to more than one bar, you know? I had the techs from NuMotion come out and do some fine tuning: making it narrower through the arms, making the speed control less jumpy at the start, etc. I got a few tips about going down hill -- make sure that I am tilted back a bit so I don't slip off the seat; make sure that I lay back for a short time every hour [yes, every hour! to prevent a bed sore, etc.

The last time I went to see my neuro, I told him I stopped taking Copaxone as it didn't seem to be helping anymore. Clearly I am now secondary progressive. There are no drugs that will help me, alas. Instead he wrote me an Rx for Gabapentin for the occasional times when I have intractable spasms in my legs. It does seem to help me sleep when my legs are jumpy as well. Other than that, he was "call me when you need me"... Hasta la vista, baby. I thought it was a rather cold way to more or less end a 23 year relationship.

So with that, I'll leave for today.

TTYL and be Well,